About us

What is NEPTUNE?

The Nephrotic Syndrome Study Network (“NEPTUNE”) is an integrated group of academic medical centers, patient support organizations (the NephCure Foundation and the Halpin Foundation), and clinical research resources dedicated to advancing the understanding and treatment of Minimal Change Disease (MCD), Focal and Segmental Glomerulosclerosis (FSGS), and Membranous Nephropathy (MN).

We can help you

  • Become aware of clinical research and clinical trial opportunities
  • Connect with expert doctors
  • Connect with patient/family support groups
  • Get help in managing your disease

You can help too! Get involved with NEPTUNE by participating in clinical trials or joining associated patient advocacy groups.

Nephrotic Syndrome Study Network

Nephrotic syndrome (NS) is a group of rare renal diseases with serious complications. The diseases that define Nephrotic Syndrome are Focal and Segmental Glomerulosclerosis (FSGS), Minimal Change Disease (MCD) and Membranous Nephropathy. Despite their rarity, these glomerular diseases generate enormous individual, economic and societal burdens. Some types of the syndrome are hereditary, but other types, for reasons largely unknown, can develop later in life.

The Nephrotic Syndrome Study Network (known as NEPTUNE) brings together physician scientists at 23 research consortia in the United States and Canada, along with the patient advocacy groups, NephCure Kidney International and the Halpin Foundation, to advance research on the diseases that define NS. Already, NEPTUNE has collected biological material and detailed clinical data from more than 450 NS research participants, and has supported pilot and ancillary studies utilizing the NEPTUNE data resources.

Now in the second 5-year funding cycle, NEPTUNE continues to recruit more research participants as well as to continue to support training and research programs for scientists and clinicians. You can find information on the NEPTUNE Ancillary Studies Program and grant and fellowship programs on this website.

View a list of our Participating Clinical Centers.


Any administrative concerns can be addressed to:


Tina Mainieri

NEPTUNE Project Manager


Division of Nephrology

University of Michigan
1150 W Medical Center Drive
Ann Arbor, Michigan 48109-5657


Phone: (734) 615-5020


Looking for specific contact information for one of our participating centers?

Please visit our Participating Clinical Centers

This consortium is part of RDCRN, an initiative of ORDRNCATS